EuropeanAlliance for Personalised Medicine
B R OW S Ewww.euapm.eu
H O R I Z O N
2 0 2 0www.horizon2020projects.com
H O R I Z O N 2 0 2 0 P R O J E C T S : P O R TA L
I S S U E S E V E N
H E A L T H & P AT I E N T D ATA
The Brussels-based European Alliance for Personalised Medicine
(EAPM), which brings together a broad range of stakeholders including
patients, clinicians, researchers, industry, academics and policy makers,
believes that the necessary collaborations should take place in an arena
based on solid ethical principles as well as those of respect, mutual
trust and goodwill.
Every healthcare system features the coming together of one set of citizens
in need of diagnosis and/or treatment and another set entrusted to deliver
it. This trust is based on a blend of technical competence and service
orientation, steered by ethical commitment and social accountability, which
forms the essence of reliable and professional healthcare.
Developing such a blend requires lengthy education and a substantial
investment by policy makers and society.
It is clear that Europe has talent. From gifted researchers to world class
clinicians, the EU is awash with intellect, skill and a sense of purpose.
All this brilliance – turned into more innovation in healthcare, through
the exploitation of Big Data, investment, collaboration and education –
will create a better world for patients, now and long into the future.
Even on a ‘local’ level, there is clearly a dearth of
‘smart’ co-operation and coherence in planning
among, for example, patients, policy makers,
academics, clinicians, governments, SMEs and,
of course, the pharmaceutical industry when it
comes to bringing down costs and ensuring that
procurement rules and reimbursement policies
work quickly and effectively.
As noted, collaboration is key, as the above can
only be achieved through the breaking down of
silo walls; in every stakeholder arena.
And then we come to education, or the current
lack of it. The true potential of this fantastic
new science will never be fully realised unless
frontline clinicians have the knowledge to
exploit it and innovators have the feedback
required. There is an urgent need for an
improvement in relationships between all key
stakeholders in order to develop trust and new
partnerships. This should have the goal of
giving clinicians better tools to treat and
inform their patients and allow healthcare
professionals (HCP) a better understanding of
their patients’ needs.
The modern patient wants to be informed in a
transparent, unpatronising and clear way about
his or her options and this lets him or her
properly into the decision making process with
regard to treatment options, taking into account
lifestyle and other factors.
In short, they want to be fully acknowledged as
citizens in the same way that everyone else is.
So the issue of education of HCPs is a major
one. It is clear that a great degree of upskilling
is already required and, to keep pace with the
science, this must be ongoing. Stakeholders
need to find a way to achieve this together, with
agreed standards across the board so that no
patient is denied a suitable, virtually tailormade
treatment due to a lack of knowledge or
understanding on behalf of the HCP treating
and diagnosing him or her.
On top of this, it is vital that, for example,
radiologists, urologists and clinicians can
understand one another and devise an holistic
response to any given treatment. This will result
in a better understanding of each other’s
discipline and allow more effective, modern-day
synergies to be developed.
offers opportunities for